spoonies in #hive-140084 • 2 months agoDonation coming soon-something newYes I have been absent for a bit. The recovery from surgery had more complications than anticipated and I am still not recovered and have some pretty serious complications that…spoonies in #hive-140084 • 5 months agoPOTS. Tale of Two PatientsDisclaimer: This post is not medical advice. I know I discuss medical misogyny a lot, that is because it affects every aspect of my life and medical care. Today I would like to…spoonies in #hive-140084 • 5 months agoDrinking Game-Take a Shot for Every Lie in My Medical ReportDrinking Game-Take a Shot for Every Lie in My Medical Report: Ortho Edition Disclaimer: This post is not medical advice. This post is for entertainment and educational…spoonies in #hive-140084 • 5 months agoSecondary Trauma From Medical Gaslighting/NeglectImage created by me using canva Alt text. -Image is of a spoon with googly eyes Trigger warning- This post will mention trauma PTSD medical neglect, medical gaslighting…spoonies in #hive-140084 • 6 months agoGender Blindness Beyond a Reasonable Goutimage created by me using canva Disclaimer: This post is not medical advice. The title is a play on words obviously but this post will be talking about medical misogyny…spoonies in #hive-140084 • 7 months agoThis month's donation done a bit differentlyImage is a screenshot I took just before sending the donation. This month's donation was done a bit differently. I needed more Hive for my main account so I essentially bought…spoonies in #hive-140084 • 7 months agoME/CFS Awareness Week/Day- Donation update- Thoughts on the futureImage created by me using Canva It has been a week from hell in my personal life. We had the death of a pet followed by the surgery/hospitalization of another pet (who is still…spoonies in #hive-140084 • 8 months agoDiabetes and a broken legImagine a scenario where you have Diabetes Mellitus. A serious life threatening condition if untreated. You were diagnosed by the only specialist in your state who has since…spoonies in #hive-140084 • 8 months agoSpermidine, the next donation ,and passive income ideas?Image created by me I wanted to write an update post and keep y'all posted . On the good news front I am responding well to spermidine. yes, it's ok to laugh at the name ha…spoonies in #hive-140084 • 8 months agoSpending Easter in the Hospital. What Happened? part 1Yes, I spent Easter in the hospital and I still am not 100% sure what happened. I have a few theories supported by my blood work but like always my most concerning symptom-loss…spoonies in #hive-140084 • 9 months agoAccount Update, Delegations and MoreImage created by me using Canva This post is not financial advice . if you decide to follow what I am doing you do so at your own risk. For people new to this profile -this…spoonies in #hive-140084 • 9 months agoFinding a Unicorn-Actual Medical Treatments!Image by Mystic Art Design fromspoonies in #hive-140084 • 9 months agoThe Doctor Who stood me up sent ME an Invoice for Her No ShowI swear you can't make this shit up. I was not going to post about this experience because it really hurt me that a doctor who is supposed to care about people with ME, POTS etc…spoonies in #hive-140084 • 9 months agoMore clinical trials torturing children with ME/CFSImage is a screenshot from the study shared for educational purposes and commentary. Link to study Trigger warning: abuse **TLspoonies in #hive-140084 • 10 months agoA few times Medical Gaslighting Almost Killed meTW: I will be talking about medical gaslighting (obviously lol) trauma, and abuse in this post. if this is a triggering subject for you, you may not want to read. Medical…spoonies in #hive-140084 • 10 months agoFebruary Donation! With proofDonations are back. Instead of monthly donations I have decided to commit to quarterly donations (at least). When I am healthy enough I will donate monthly but I can at this…spoonies in #hive-140084 • 11 months agoStopping Rapamycin and taking a (permanent?) breakSo. I am stopping Rapamycin because it has not helped my quality of life. In fact it seems to be worsening it at least in terms of energy/ability. It helps with one type of…spoonies in #hive-140084 • last yearThings Not to Say to Disabled/Chronically Ill people This Year (or Ever)Here are a few things to never say to a disabled/chronically ill person (unless for whatever reason they have specifically told you saying these things is helpful to them in…spoonies in #hive-140084 • last yearMy hair is growing like mad, here are my thoughtsThe past month or so I have noticed a change in my hair and skin. I will do my best to give my thoughts, details on supplements etc but please note I am not a medical doctor or…spoonies in #hive-140084 • last yearGaslighting ,Rapamycin, hair growth and other stuffTrigger warning: I will be talking about gaslighting and emotion/medical abuse and neglect in this post. If these topics are triggering for you please be cautioned. I believe…